I love you.
More deeply, truly and madly than I ever thought possible. We were meant to grow old together, but your body disagrees. I stopped being angry about it a while ago. With such a loving, caring, pure and gentle heart, it’s just amazing that you were put here in the first place. My angel with paws.
I love you.
Look who just got some medals🥇🥈? Tiago got a gold medal for the 800 meters run and a silver medal for the 200 meters run at his very last Sports Day at his school. Unfortunately by the time I arrived from work he had already done most of the activities but still managed to catch some of the magic.
Истинное лицо моего Северина - неугомонное шило в попе! 😆 его теперь вообще не остановить - ползает по всей квартире и наводит свои порядки🤪Не смогла остановиться на одной фото, так что ловите гифку 😏 #superseverynka
"Oh, leave your mistake in the doorway. Give us a sign that you've seen what you've done and look for the sun and lift up your head. Don't stay low, don't stay low, no, just pick yourself up and go on."
⚡️ TWO YEARS ON ⚡️
Rafe is two and a half. A whole 30 months since he came crashing into the world. Which means 30 months since we were told he’d suffered a significant brain injury.
We always knew our journey would be a long and complicated one. But when Rafe was about six months old we contacted a neurological rehabilitation / plasticity specialist and a few months after that we were officially on the snowdrop program.
Last week Rafe has his fourth assessment. And it didn’t disappoint. Of all the areas reviewed, Rafe was only below age appropriate in the two motor elements. Which we would expect. And to be honest, ever there he’s catching up fast. In all other areas he excelled, and was even ticking off elements of a neurotypical child aged 3.5+.
We’ve gone from wondering whether Rafe’s would ever walk, talk, or understand simple emotion to being told our biggest challenge will most likely be deciding which university he should go to. How he’s probably going to be the most popular kid at preschool on account of how sociable and just full of joy he is.
This isn’t a life we thought we’d be able to plan for Rafe. And while he’ll always have challenges with his right side (and let’s not forget the shunt in his brain which keeps him alive and well) - we’re slowly starting to imagine a life for him which at one point seemed far out of reach.
It’s been hard work. Every day. The kid thinks physio is play time, it’s all he’s ever known. He says “two hands” to himself while he’s playing because he hears it so much from us. But it’s been worth every single second of it.
And I can’t wait to see what the next six month Snowdrop program does for Rafe.