#lupuswarrior Instagram Photos & Videos

lupuswarrior - 275230 posts

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  • gmphotography.ca - Gregory Murray @gmphotography.ca 5 hours ago
  • So many changes. I always loved change and found it exciting, challenging and refreshing. Perhaps that's why I'm not completely overwhelmed with the changes that #lupus is bringing to me. It's certainly not easy, but my predisposition for loving change does help me. I think another big factor in not being too overwhelmed is the fact that I accept the change. I know that might not make a lot of sense to some of you who would rather tell me to fight the change, to not accept it, but to do so, I would be simply ignoring the obvious. Instead of managing and controlling the symptoms I'd be pushing it to the side and finding myself paying for it later.
Essentially that's what happened the other day. I was feeling a little better than usual, took upon myself a little too much and paid the price that evening. I think I mentioned in my last post about needing to be a bit more selfish when it comes to my time and putting others before myself. Honestly I think that is the hardest part of the change for me to do. I always want to help others. Always want to be the one for others to lean on for support, always want to be the encourager, always want to be the giver. In everything! So it's been a challenge trying to learn to stop and let others give into me, to allow others to be a support to me.
One of the reasons I like photography so much is that it gets me out into nature where I can be re-grounded. It is calming, I can gather my thoughts, utter my prayers and come to terms with the challenges life throws at me and be at peace in the storm. Nature is very much my sanctuary.
About the image: taken last month with the other three. I tried editing it several times before but never liked it so I let it ruminate a little and finally found the message I wanted to convey: peace, tranquility.
I hope it is a breath of fresh air to your soul as it had been to mine when I was sitting on the beach, taking in the scene before me.
#lupuswarrior #lupus #mentalhealth #autoimmune #shootslik #teampentax #K3II #50mm1.7M #beautifulbc #hikekamloops #madeinaffinity #explorekamloops @ricohpentax @slikusa @affinitybyserif @lupuscanada So many changes. I always loved change and found it exciting, challenging and refreshing. Perhaps that's why I'm not completely overwhelmed with the changes that #lupus is bringing to me. It's certainly not easy, but my predisposition for loving change does help me. I think another big factor in not being too overwhelmed is the fact that I accept the change. I know that might not make a lot of sense to some of you who would rather tell me to fight the change, to not accept it, but to do so, I would be simply ignoring the obvious. Instead of managing and controlling the symptoms I'd be pushing it to the side and finding myself paying for it later. Essentially that's what happened the other day. I was feeling a little better than usual, took upon myself a little too much and paid the price that evening. I think I mentioned in my last post about needing to be a bit more selfish when it comes to my time and putting others before myself. Honestly I think that is the hardest part of the change for me to do. I always want to help others. Always want to be the one for others to lean on for support, always want to be the encourager, always want to be the giver. In everything! So it's been a challenge trying to learn to stop and let others give into me, to allow others to be a support to me. One of the reasons I like photography so much is that it gets me out into nature where I can be re-grounded. It is calming, I can gather my thoughts, utter my prayers and come to terms with the challenges life throws at me and be at peace in the storm. Nature is very much my sanctuary. About the image: taken last month with the other three. I tried editing it several times before but never liked it so I let it ruminate a little and finally found the message I wanted to convey: peace, tranquility. I hope it is a breath of fresh air to your soul as it had been to mine when I was sitting on the beach, taking in the scene before me. #lupuswarrior #lupus #mentalhealth #autoimmune #shootslik #teampentax #k3ii #50mm1.7M #beautifulbc #hikekamloops #madeinaffinity #explorekamloops @ricohpentax @slikusa @affinitybyserif @lupuscanada
  • So many changes. I always loved change and found it exciting, challenging and refreshing. Perhaps that's why I'm not completely overwhelmed with the changes that #lupus is bringing to me. It's certainly not easy, but my predisposition for loving change does help me. I think another big factor in not being too overwhelmed is the fact that I accept the change. I know that might not make a lot of sense to some of you who would rather tell me to fight the change, to not accept it, but to do so, I would be simply ignoring the obvious. Instead of managing and controlling the symptoms I'd be pushing it to the side and finding myself paying for it later. Essentially that's what happened the other day. I was feeling a little better than usual, took upon myself a little too much and paid the price that evening. I think I mentioned in my last post about needing to be a bit more selfish when it comes to my time and putting others before myself. Honestly I think that is the hardest part of the change for me to do. I always want to help others. Always want to be the one for others to lean on for support, always want to be the encourager, always want to be the giver. In everything! So it's been a challenge trying to learn to stop and let others give into me, to allow others to be a support to me. One of the reasons I like photography so much is that it gets me out into nature where I can be re-grounded. It is calming, I can gather my thoughts, utter my prayers and come to terms with the challenges life throws at me and be at peace in the storm. Nature is very much my sanctuary. About the image: taken last month with the other three. I tried editing it several times before but never liked it so I let it ruminate a little and finally found the message I wanted to convey: peace, tranquility. I hope it is a breath of fresh air to your soul as it had been to mine when I was sitting on the beach, taking in the scene before me. #lupuswarrior #lupus #mentalhealth #autoimmune #shootslik #teampentax #k3ii #50mm1.7M #beautifulbc #hikekamloops #madeinaffinity #explorekamloops @ricohpentax @slikusa @affinitybyserif @lupuscanada
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  • jumo312 - Jules @jumo312 7 hours ago
  • Turning Pain Into Power 
#lupusawareness this is what MY lupus looked like 2006 to 2017
-
🦋What Lupus gave me:
Shame, Humiliation, Loss of Self because of all these cumulative and chronic conditions.
-
Adrenal insufficiency -scalp psoriasis- severe swelling that hurt to walk or use my hands - severe joint pain that would wake me from my sleep- insomnia as a result of chronic pain - low platelets - low hemoglobin - constant infections - chronic anemia requiring IV iron every 90 days -chronic bronchitis- temporary blindness - lupus iritis - photophobia - sensitivities to sun and extreme heat - digestive difficulties - pancreatitis- fatty liver from steroids - thyroid dysfunction- interstitial cystitis (IC)/bladder pain syndrome (BPS) - several food intolerances to vegetables and fruit -a food allergy requiring an epipen- chronic neuropathy - myositis muscle weakness of hips, thighs, shoulders and upper arms; difficulty in climbing stairs and getting up from a chair - at times too difficult to think, walk or talk -weight gain from oral hydrocortisone or prednisone daily for six years on varying levels of dosing- in and out of disabilty claims and away from work often; in a career I am passionate about.
-
Suicidal depression that I think may have been from antidepressants prescribed to calm anxiety levels [because that is not who I am]. Extreme anxiety from always being in the hospital for a procedure - always at one of my twelve doctor’s offices - fear of losing everything I worked hard for and no end in sight.
-
Stress; result of new illnesses adding to the others above with no solutions - standard textbook therapy methods just gave more side effects.
-
Finally, I had one earth angel specialist MD - found babesia in my blood. It was a needle in the haystack- MD provided non traditional therapies and never gave up on me. -always work in progress - not always an easy fix or solution but there are jump start tools that offered a temporary reset. - -
🦸🏻‍♀️What Lupus Made Me:
Brave - Powerful - Strong
Vowing to help others RUN 🏃🏻‍♀️ out of their darkness.
-
I am a #LupusWarrior and this is just the start of my story
#bravewingsfoundation
#risingaboveautoimmunedisease Turning Pain Into Power #lupusawareness this is what MY lupus looked like 2006 to 2017 - 🦋What Lupus gave me: Shame, Humiliation, Loss of Self because of all these cumulative and chronic conditions. - Adrenal insufficiency -scalp psoriasis- severe swelling that hurt to walk or use my hands - severe joint pain that would wake me from my sleep- insomnia as a result of chronic pain - low platelets - low hemoglobin - constant infections - chronic anemia requiring IV iron every 90 days -chronic bronchitis- temporary blindness - lupus iritis - photophobia - sensitivities to sun and extreme heat - digestive difficulties - pancreatitis- fatty liver from steroids - thyroid dysfunction- interstitial cystitis (IC)/bladder pain syndrome (BPS) - several food intolerances to vegetables and fruit -a food allergy requiring an epipen- chronic neuropathy - myositis muscle weakness of hips, thighs, shoulders and upper arms; difficulty in climbing stairs and getting up from a chair - at times too difficult to think, walk or talk -weight gain from oral hydrocortisone or prednisone daily for six years on varying levels of dosing- in and out of disabilty claims and away from work often; in a career I am passionate about. - Suicidal depression that I think may have been from antidepressants prescribed to calm anxiety levels [because that is not who I am]. Extreme anxiety from always being in the hospital for a procedure - always at one of my twelve doctor’s offices - fear of losing everything I worked hard for and no end in sight. - Stress; result of new illnesses adding to the others above with no solutions - standard textbook therapy methods just gave more side effects. - Finally, I had one earth angel specialist MD - found babesia in my blood. It was a needle in the haystack- MD provided non traditional therapies and never gave up on me. -always work in progress - not always an easy fix or solution but there are jump start tools that offered a temporary reset. - - 🦸🏻‍♀️What Lupus Made Me: Brave - Powerful - Strong Vowing to help others RUN 🏃🏻‍♀️ out of their darkness. - I am a #lupuswarrior and this is just the start of my story #bravewingsfoundation #risingaboveautoimmunedisease
  • Turning Pain Into Power #lupusawareness this is what MY lupus looked like 2006 to 2017 - 🦋What Lupus gave me: Shame, Humiliation, Loss of Self because of all these cumulative and chronic conditions. - Adrenal insufficiency -scalp psoriasis- severe swelling that hurt to walk or use my hands - severe joint pain that would wake me from my sleep- insomnia as a result of chronic pain - low platelets - low hemoglobin - constant infections - chronic anemia requiring IV iron every 90 days -chronic bronchitis- temporary blindness - lupus iritis - photophobia - sensitivities to sun and extreme heat - digestive difficulties - pancreatitis- fatty liver from steroids - thyroid dysfunction- interstitial cystitis (IC)/bladder pain syndrome (BPS) - several food intolerances to vegetables and fruit -a food allergy requiring an epipen- chronic neuropathy - myositis muscle weakness of hips, thighs, shoulders and upper arms; difficulty in climbing stairs and getting up from a chair - at times too difficult to think, walk or talk -weight gain from oral hydrocortisone or prednisone daily for six years on varying levels of dosing- in and out of disabilty claims and away from work often; in a career I am passionate about. - Suicidal depression that I think may have been from antidepressants prescribed to calm anxiety levels [because that is not who I am]. Extreme anxiety from always being in the hospital for a procedure - always at one of my twelve doctor’s offices - fear of losing everything I worked hard for and no end in sight. - Stress; result of new illnesses adding to the others above with no solutions - standard textbook therapy methods just gave more side effects. - Finally, I had one earth angel specialist MD - found babesia in my blood. It was a needle in the haystack- MD provided non traditional therapies and never gave up on me. -always work in progress - not always an easy fix or solution but there are jump start tools that offered a temporary reset. - - 🦸🏻‍♀️What Lupus Made Me: Brave - Powerful - Strong Vowing to help others RUN 🏃🏻‍♀️ out of their darkness. - I am a #lupuswarrior and this is just the start of my story #bravewingsfoundation #risingaboveautoimmunedisease
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