#lupusadvocacy Instagram Photos & Videos

lupusadvocacy - 1535 posts

Latest Instagram Posts

  • thelupustrainer - Sara Esidore @thelupustrainer 2 days ago
  • Uhhmm excuse me @lupusorg @lupusfl I’m a little confused as to why nobody has called me for my purple cape fitting yet???? The Lupus Advocacy Summit in Washington D.C. is less than two weeks YOU GUYS I HAVE TO START PLANNING OUTFITS OVER HERE 💁🏻‍♀️😂😂 .
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I’m not sure the Lupus Foundation of America knew what they were signing up for when they brought me on as an Ambassador for the 2018-2019 term lol SORRY GUYS IT’S TOO LATE YOU ALREADY SAID I COULD GO TO D.C. 😂😂 #notakebacks
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Pictured is my buddy Caleb (whose Mom @tallylupie is an amazing Lupus Warrior 💪🦋) modeling our Lupus Foundation Advocate capes at a previous seminar!
Caleb is available for future superhero modeling gigs however he’s in high demand and very expensive. I’m a slightly puffy, slightly rashy self-titled Instagram model so I work for free 😂😂 #callme 😉☎️📟📞
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Happy Wednesday, everyone! If anyone needs me today hit me up, I’ll just be over here steaming my cape 💅🏼💁🏻‍♀️💜 #notamodel #notevenclose #whensmycapefitting #lupuswolfpack 🐺🐺#lupusadvocacy 🦋💜 Uhhmm excuse me @lupusorg @lupusfl I’m a little confused as to why nobody has called me for my purple cape fitting yet???? The Lupus Advocacy Summit in Washington D.C. is less than two weeks YOU GUYS I HAVE TO START PLANNING OUTFITS OVER HERE 💁🏻‍♀️😂😂 . . I’m not sure the Lupus Foundation of America knew what they were signing up for when they brought me on as an Ambassador for the 2018-2019 term lol SORRY GUYS IT’S TOO LATE YOU ALREADY SAID I COULD GO TO D.C. 😂😂 #notakebacks . . Pictured is my buddy Caleb (whose Mom @tallylupie is an amazing Lupus Warrior 💪🦋) modeling our Lupus Foundation Advocate capes at a previous seminar! Caleb is available for future superhero modeling gigs however he’s in high demand and very expensive. I’m a slightly puffy, slightly rashy self-titled Instagram model so I work for free 😂😂 #callme 😉☎️📟📞 . . Happy Wednesday, everyone! If anyone needs me today hit me up, I’ll just be over here steaming my cape 💅🏼💁🏻‍♀️💜 #notamodel #notevenclose #whensmycapefitting #lupuswolfpack 🐺🐺#lupusadvocacy 🦋💜
  • Uhhmm excuse me @lupusorg @lupusfl I’m a little confused as to why nobody has called me for my purple cape fitting yet???? The Lupus Advocacy Summit in Washington D.C. is less than two weeks YOU GUYS I HAVE TO START PLANNING OUTFITS OVER HERE 💁🏻‍♀️😂😂 . . I’m not sure the Lupus Foundation of America knew what they were signing up for when they brought me on as an Ambassador for the 2018-2019 term lol SORRY GUYS IT’S TOO LATE YOU ALREADY SAID I COULD GO TO D.C. 😂😂 #notakebacks . . Pictured is my buddy Caleb (whose Mom @tallylupie is an amazing Lupus Warrior 💪🦋) modeling our Lupus Foundation Advocate capes at a previous seminar! Caleb is available for future superhero modeling gigs however he’s in high demand and very expensive. I’m a slightly puffy, slightly rashy self-titled Instagram model so I work for free 😂😂 #callme 😉☎️📟📞 . . Happy Wednesday, everyone! If anyone needs me today hit me up, I’ll just be over here steaming my cape 💅🏼💁🏻‍♀️💜 #notamodel #notevenclose #whensmycapefitting #lupuswolfpack 🐺🐺#lupusadvocacy 🦋💜
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  • thelupustrainer - Sara Esidore @thelupustrainer 3 days ago
  • Lupus is an invisible, incurable chronic illness, so very few people get to see the brutal reality we live with when we battle this disease each day. This is why we must step up and speak out about it- if we don’t nobody will ever know how much we suffer or how desperately we need better treatment options. #lupusadvocacy .
. 💥📢🐺🗣💜 LUPUS WOLFPACK UPDATE:
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👉 I’m working on compiling our master Lupus Wolfpack IG name list from my previous post and I’m also setting up spam filters to protect our list from being spammers. 💜 #wearesicknotstupid ✋
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. 👉 I’m working on getting us some hoodies/jackets/other gear!! My first choice in hoodie style & brand is backordered right now so I’m waiting on other samples to make sure we find good quality ones, I will not sell anyone a hoodie I have never worn myself. I have run a gym apparel line and also a small apparel company as a side hustle briefly so trust me when I say we do not want to cut corners here. I also need to make sure we will have enough for everyone because I know this won’t be a small batch order lol 🐺🐺🐺🐺🐺🐺🐺🐺🐺🐺🐺 and I don’t want to make promises and delivery deadlines that I can’t keep due to overwhelming demand. I am assembling a team to help me undertake this project and I promise we will have the preorder page up soon for ya’ll!! #wearetotallygettingjackets 😎
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. 👉 @thelupuswifey and I are working on all kinds of exciting things to bring ya’ll during our trip to Washington D.C. next month for the Lupus Advocacy Summit including podcasting on the road from the Summit with @lupus_uncensored!! 🎙🔥🎧💜🤗 .
. 🚨🐺🗣 WOLFPACK POLL 🚨🐺🗣 .
If you had just 3 minutes in front of your Congressman/Congresswoman to tell your story/advocate for Lupus research funding and better healthcare programs what would you say? Please leave a comment below or email us at: lupuspodcast@gmail.com 📥 .
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We hope everyone is having a flare-free and pain-free day today! Thank you so much for all the love you’ve given @thelupuswifey and I on social media lately and for listening to our podcast, we truly appreciate all the virtual hugs and are blown away by all your kind words and support 🙏☺️😍😭😭🐺🐺🐺⚔️💜💜💜 Lupus is an invisible, incurable chronic illness, so very few people get to see the brutal reality we live with when we battle this disease each day. This is why we must step up and speak out about it- if we don’t nobody will ever know how much we suffer or how desperately we need better treatment options. #lupusadvocacy . . 💥📢🐺🗣💜 LUPUS WOLFPACK UPDATE: . . 👉 I’m working on compiling our master Lupus Wolfpack IG name list from my previous post and I’m also setting up spam filters to protect our list from being spammers. 💜 #wearesicknotstupid ✋ . . 👉 I’m working on getting us some hoodies/jackets/other gear!! My first choice in hoodie style & brand is backordered right now so I’m waiting on other samples to make sure we find good quality ones, I will not sell anyone a hoodie I have never worn myself. I have run a gym apparel line and also a small apparel company as a side hustle briefly so trust me when I say we do not want to cut corners here. I also need to make sure we will have enough for everyone because I know this won’t be a small batch order lol 🐺🐺🐺🐺🐺🐺🐺🐺🐺🐺🐺 and I don’t want to make promises and delivery deadlines that I can’t keep due to overwhelming demand. I am assembling a team to help me undertake this project and I promise we will have the preorder page up soon for ya’ll!! #wearetotallygettingjackets 😎 . . 👉 @thelupuswifey and I are working on all kinds of exciting things to bring ya’ll during our trip to Washington D.C. next month for the Lupus Advocacy Summit including podcasting on the road from the Summit with @lupus_uncensored!! 🎙🔥🎧💜🤗 . . 🚨🐺🗣 WOLFPACK POLL 🚨🐺🗣 . If you had just 3 minutes in front of your Congressman/Congresswoman to tell your story/advocate for Lupus research funding and better healthcare programs what would you say? Please leave a comment below or email us at: lupuspodcast@gmail.com 📥 . . We hope everyone is having a flare-free and pain-free day today! Thank you so much for all the love you’ve given @thelupuswifey and I on social media lately and for listening to our podcast, we truly appreciate all the virtual hugs and are blown away by all your kind words and support 🙏☺️😍😭😭🐺🐺🐺⚔️💜💜💜
  • Lupus is an invisible, incurable chronic illness, so very few people get to see the brutal reality we live with when we battle this disease each day. This is why we must step up and speak out about it- if we don’t nobody will ever know how much we suffer or how desperately we need better treatment options. #lupusadvocacy . . 💥📢🐺🗣💜 LUPUS WOLFPACK UPDATE: . . 👉 I’m working on compiling our master Lupus Wolfpack IG name list from my previous post and I’m also setting up spam filters to protect our list from being spammers. 💜 #wearesicknotstupid ✋ . . 👉 I’m working on getting us some hoodies/jackets/other gear!! My first choice in hoodie style & brand is backordered right now so I’m waiting on other samples to make sure we find good quality ones, I will not sell anyone a hoodie I have never worn myself. I have run a gym apparel line and also a small apparel company as a side hustle briefly so trust me when I say we do not want to cut corners here. I also need to make sure we will have enough for everyone because I know this won’t be a small batch order lol 🐺🐺🐺🐺🐺🐺🐺🐺🐺🐺🐺 and I don’t want to make promises and delivery deadlines that I can’t keep due to overwhelming demand. I am assembling a team to help me undertake this project and I promise we will have the preorder page up soon for ya’ll!! #wearetotallygettingjackets 😎 . . 👉 @thelupuswifey and I are working on all kinds of exciting things to bring ya’ll during our trip to Washington D.C. next month for the Lupus Advocacy Summit including podcasting on the road from the Summit with @lupus_uncensored!! 🎙🔥🎧💜🤗 . . 🚨🐺🗣 WOLFPACK POLL 🚨🐺🗣 . If you had just 3 minutes in front of your Congressman/Congresswoman to tell your story/advocate for Lupus research funding and better healthcare programs what would you say? Please leave a comment below or email us at: lupuspodcast@gmail.com 📥 . . We hope everyone is having a flare-free and pain-free day today! Thank you so much for all the love you’ve given @thelupuswifey and I on social media lately and for listening to our podcast, we truly appreciate all the virtual hugs and are blown away by all your kind words and support 🙏☺️😍😭😭🐺🐺🐺⚔️💜💜💜
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  • ill.abled_tribe - ILL.ABLED ™ @ill.abled_tribe 1 week ago
  • #tbt I wrestled with posting these pictures. Everytime I look at them I become emotional and vulnerable. That's a side of me, I generally don't let people see. 😣
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.. Additionally, it's not exactly like they are flattering. I had just cut off all my hair (Idk if it was thinning due to Lupus or the meds, but I was shedding hair non stop and it was coming out during combing so I just cut it off), and had gained around 60 lbs from being pumped full of steriods. 🙈😖
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These were taken during the first year I was diagnosed. I had stage 4 CKD (but miraculously still had 100% functionality), 🙏 and was in the hospital for a kidney biopsy. Prior to this, my last hospital stay had been when I was born. This stay was rough. I couldn't eat for 18 hours, couldn't move from my side position for 8 hours, had to use a bed pan, got woken up EVERY hour for vital readings AND woken up every three hours for lab work. The only good thing was that my mom stayed overnight with me and never left my side.
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.. The crazy thing is I felt FINE! I didn't have any pain or symptoms to make me think anything was wrong. Had I not kept my appointment with my Nephrologist, I wouldn't have known I had issues. ..
PLEASE, stay diligent with your health. Lupus is cruel and conniving. Keep your appointments. Be honest with your Specialist and Caregivers. #Spoonies often keep things bottled up because we are afraid of alarming others. Get your various screenings, annual exams and physicals! #loveyourself #chronicillness #chronicillnesswarrior #invisibleillness #invisibleillnesswarrior #lupusawareness #lupuswarrior #lupus #lupusadvocacy #weneedacure #chrons #colitis #graves #ms #rheumatoidarthritis #fibromyalgia #lymedisease #celiacdisease #tbt I wrestled with posting these pictures. Everytime I look at them I become emotional and vulnerable. That's a side of me, I generally don't let people see. 😣 .. .. Additionally, it's not exactly like they are flattering. I had just cut off all my hair (Idk if it was thinning due to Lupus or the meds, but I was shedding hair non stop and it was coming out during combing so I just cut it off), and had gained around 60 lbs from being pumped full of steriods. 🙈😖 .. .. These were taken during the first year I was diagnosed. I had stage 4 CKD (but miraculously still had 100% functionality), 🙏 and was in the hospital for a kidney biopsy. Prior to this, my last hospital stay had been when I was born. This stay was rough. I couldn't eat for 18 hours, couldn't move from my side position for 8 hours, had to use a bed pan, got woken up EVERY hour for vital readings AND woken up every three hours for lab work. The only good thing was that my mom stayed overnight with me and never left my side. .. .. The crazy thing is I felt FINE! I didn't have any pain or symptoms to make me think anything was wrong. Had I not kept my appointment with my Nephrologist, I wouldn't have known I had issues. .. PLEASE, stay diligent with your health. Lupus is cruel and conniving. Keep your appointments. Be honest with your Specialist and Caregivers. #spoonies often keep things bottled up because we are afraid of alarming others. Get your various screenings, annual exams and physicals! #loveyourself #chronicillness #chronicillnesswarrior #invisibleillness #invisibleillnesswarrior #lupusawareness #lupuswarrior #lupus #lupusadvocacy #weneedacure #chrons #colitis #graves #ms #rheumatoidarthritis #fibromyalgia #lymedisease #celiacdisease
  • #tbt I wrestled with posting these pictures. Everytime I look at them I become emotional and vulnerable. That's a side of me, I generally don't let people see. 😣 .. .. Additionally, it's not exactly like they are flattering. I had just cut off all my hair (Idk if it was thinning due to Lupus or the meds, but I was shedding hair non stop and it was coming out during combing so I just cut it off), and had gained around 60 lbs from being pumped full of steriods. 🙈😖 .. .. These were taken during the first year I was diagnosed. I had stage 4 CKD (but miraculously still had 100% functionality), 🙏 and was in the hospital for a kidney biopsy. Prior to this, my last hospital stay had been when I was born. This stay was rough. I couldn't eat for 18 hours, couldn't move from my side position for 8 hours, had to use a bed pan, got woken up EVERY hour for vital readings AND woken up every three hours for lab work. The only good thing was that my mom stayed overnight with me and never left my side. .. .. The crazy thing is I felt FINE! I didn't have any pain or symptoms to make me think anything was wrong. Had I not kept my appointment with my Nephrologist, I wouldn't have known I had issues. .. PLEASE, stay diligent with your health. Lupus is cruel and conniving. Keep your appointments. Be honest with your Specialist and Caregivers. #spoonies often keep things bottled up because we are afraid of alarming others. Get your various screenings, annual exams and physicals! #loveyourself #chronicillness #chronicillnesswarrior #invisibleillness #invisibleillnesswarrior #lupusawareness #lupuswarrior #lupus #lupusadvocacy #weneedacure #chrons #colitis #graves #ms #rheumatoidarthritis #fibromyalgia #lymedisease #celiacdisease
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  • marcohaamans - Join Together To Fight Lupus @marcohaamans 1 week ago
  • #LUPUS 2019 💪💪💪 #Lupusadvocacy
#lupusadvocate 💪💪💪 CONGRATULATIONS AND THANK YOU @ladygaga💪 "I keep seeing this girl. It’s in a dream. In the dream I’m playing at an amphitheater, outdoors, and beyond the seats there’s a field in back — it’s the cheap tickets. That’s where the girl is sitting, dressed in a Hanes sweatshirt, wearing her mom’s rolled-up jeans. She has three babies, two are running around her. There’s a cigarette in her hand, a glass of Pinot Grigio. She’s got on a lot of jewelry, mostly fake, but she also has on one heirloom piece. This girl is singing every word and she thinks, How is it possible that Lady Gaga understands how I feel? That girl — it’s me. She’s the one I’m writing to. With Joanne, I wanted to reach people, I wanted to bring all parts of the country together through this record," she said.

Do you want better #Treatment, more #Education and a #Cure one day, LIKE👍 the Facebook page World Lupus Federation and we fight #Worldwide #Together

LET'S JOIN TOGETHER TO FIGHT AGAINST LUPUS 
STILL A MISTERY AND NO CURE! 
LET'S UNITE TO FIGHT AGAINST LUPUS

Please let al World Lupus Warriors come together this year! 
WWW.WORLDLUPUSFEDERATION.ORG

LIKE AND SHARE! 
Do you have Lupus or do you know someone with Lupus, please join the #WorldLupusFederation #WorldLupusDay #LupusResearchAlliance #LupusOrganisation of the world

Connecting 6 million poeple around the world and fight together for a future without Lupus!

To solve the cruel mistery and find a Cure one day!  World Lupus Federation in the hope that many LupusWarriors will join in 2019 to fight together for a future without Lupus.

To make World Lupus Federation and World Lupus Day great!

www.worldlupusfederation.org

#SolveTheMistery #Lupus

Lupus is often diagnosed wrong or diagnosed too late.

It is important to raise awareness worldwide for this cruel disease that still has no cure yet.

#MorethanLupus
#LupusVoice

#SystemicLupusErythematosus #SystemicLupusErythematodes

@Lupusorg For more #LupusResearch @lupusresearchalliance around the world better #LupusTreatment #LupusEducation and a #LupusCure one day for every #LupusWarrior #LupusWarriors

#Lupusfff
#LupusEurope #lupus 2019 💪💪💪 #lupusadvocacy #lupusadvocate 💪💪💪 CONGRATULATIONS AND THANK YOU @ladygaga💪 "I keep seeing this girl. It’s in a dream. In the dream I’m playing at an amphitheater, outdoors, and beyond the seats there’s a field in back — it’s the cheap tickets. That’s where the girl is sitting, dressed in a Hanes sweatshirt, wearing her mom’s rolled-up jeans. She has three babies, two are running around her. There’s a cigarette in her hand, a glass of Pinot Grigio. She’s got on a lot of jewelry, mostly fake, but she also has on one heirloom piece. This girl is singing every word and she thinks, How is it possible that Lady Gaga understands how I feel? That girl — it’s me. She’s the one I’m writing to. With Joanne, I wanted to reach people, I wanted to bring all parts of the country together through this record," she said. Do you want better #treatment, more #education and a #cure one day, LIKE👍 the Facebook page World Lupus Federation and we fight #worldwide #together LET'S JOIN TOGETHER TO FIGHT AGAINST LUPUS STILL A MISTERY AND NO CURE! LET'S UNITE TO FIGHT AGAINST LUPUS Please let al World Lupus Warriors come together this year! WWW.WORLDLUPUSFEDERATION.ORG LIKE AND SHARE! Do you have Lupus or do you know someone with Lupus, please join the #worldlupusfederation #worldlupusday #lupusresearchalliance #lupusorganisation of the world Connecting 6 million poeple around the world and fight together for a future without Lupus! To solve the cruel mistery and find a Cure one day! World Lupus Federation in the hope that many LupusWarriors will join in 2019 to fight together for a future without Lupus. To make World Lupus Federation and World Lupus Day great! www.worldlupusfederation.org #solvethemistery #lupus Lupus is often diagnosed wrong or diagnosed too late. It is important to raise awareness worldwide for this cruel disease that still has no cure yet. #morethanlupus #lupusvoice #systemiclupuserythematosus #systemiclupuserythematodes @lupusorg For more #lupusresearch @lupusresearchalliance around the world better #lupustreatment #lupuseducation and a #lupuscure one day for every #lupuswarrior #lupuswarriors #lupusfff #lupuseurope
  • #lupus 2019 💪💪💪 #lupusadvocacy #lupusadvocate 💪💪💪 CONGRATULATIONS AND THANK YOU @ladygaga💪 "I keep seeing this girl. It’s in a dream. In the dream I’m playing at an amphitheater, outdoors, and beyond the seats there’s a field in back — it’s the cheap tickets. That’s where the girl is sitting, dressed in a Hanes sweatshirt, wearing her mom’s rolled-up jeans. She has three babies, two are running around her. There’s a cigarette in her hand, a glass of Pinot Grigio. She’s got on a lot of jewelry, mostly fake, but she also has on one heirloom piece. This girl is singing every word and she thinks, How is it possible that Lady Gaga understands how I feel? That girl — it’s me. She’s the one I’m writing to. With Joanne, I wanted to reach people, I wanted to bring all parts of the country together through this record," she said. Do you want better #treatment, more #education and a #cure one day, LIKE👍 the Facebook page World Lupus Federation and we fight #worldwide #together LET'S JOIN TOGETHER TO FIGHT AGAINST LUPUS STILL A MISTERY AND NO CURE! LET'S UNITE TO FIGHT AGAINST LUPUS Please let al World Lupus Warriors come together this year! WWW.WORLDLUPUSFEDERATION.ORG LIKE AND SHARE! Do you have Lupus or do you know someone with Lupus, please join the #worldlupusfederation #worldlupusday #lupusresearchalliance #lupusorganisation of the world Connecting 6 million poeple around the world and fight together for a future without Lupus! To solve the cruel mistery and find a Cure one day! World Lupus Federation in the hope that many LupusWarriors will join in 2019 to fight together for a future without Lupus. To make World Lupus Federation and World Lupus Day great! www.worldlupusfederation.org #solvethemistery #lupus Lupus is often diagnosed wrong or diagnosed too late. It is important to raise awareness worldwide for this cruel disease that still has no cure yet. #morethanlupus #lupusvoice #systemiclupuserythematosus #systemiclupuserythematodes @lupusorg For more #lupusresearch @lupusresearchalliance around the world better #lupustreatment #lupuseducation and a #lupuscure one day for every #lupuswarrior #lupuswarriors #lupusfff #lupuseurope
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  • lupusresearchalliance - Lupus Research Alliance @lupusresearchalliance 1 week ago
  • Our #BreakingThrough campaign videos highlight how the Lupus Research Alliance is uniting the global community to break through the complexities of lupus by raising awareness, advancing new treatments, advocating for more federal research dollars, and funding discoveries that will lead to prevention and a cure.
In this video, our Board member and Emmy winning TV newscaster Brenda Blackmon shares how the Lupus Research Alliance advocates have been BREAKING THROUGH in securing government funds for lupus research.
Learn how you can advocate for lupus at 🔗bit.ly/advocate4lupus
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#lupus #lupusresearch #lupusadvocate #lupusadvocacy #advocate4lupus #lupuseadvocate #LupusResearchAlliance Our #breakingthrough campaign videos highlight how the Lupus Research Alliance is uniting the global community to break through the complexities of lupus by raising awareness, advancing new treatments, advocating for more federal research dollars, and funding discoveries that will lead to prevention and a cure. In this video, our Board member and Emmy winning TV newscaster Brenda Blackmon shares how the Lupus Research Alliance advocates have been BREAKING THROUGH in securing government funds for lupus research. Learn how you can advocate for lupus at 🔗bit.ly/advocate4lupus . . . #lupus #lupusresearch #lupusadvocate #lupusadvocacy #advocate4lupus #lupuseadvocate #lupusresearchalliance
  • Our #breakingthrough campaign videos highlight how the Lupus Research Alliance is uniting the global community to break through the complexities of lupus by raising awareness, advancing new treatments, advocating for more federal research dollars, and funding discoveries that will lead to prevention and a cure. In this video, our Board member and Emmy winning TV newscaster Brenda Blackmon shares how the Lupus Research Alliance advocates have been BREAKING THROUGH in securing government funds for lupus research. Learn how you can advocate for lupus at 🔗bit.ly/advocate4lupus . . . #lupus #lupusresearch #lupusadvocate #lupusadvocacy #advocate4lupus #lupuseadvocate #lupusresearchalliance
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  • thelupustrainer - Sara Esidore @thelupustrainer 1 week ago
  • It’s Monday morning so every Lupus Warrior is putting on 3 things this morning:
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1. Our armor ⚔️🛡- to hide the pain and suffering because we have some #BOSS level shit to do today. 💪💯 #getoutofourwaylupus
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2. Our clothes 👔👕👚👗👞👠- we’re strategically dressing to hide our rashes and Lupus scars so we are not viewed as weak, sick, or incompetent in our workplaces. #lupusdoublelife
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3. A smile 😀😉- because even though we are in horrible pain and beyond exhausted, we live to fight another day and that alone is something to smile about. 🙌💯 PLUS WE’RE GETTING WOLFPACK JACKETS/HOODIES SOON SO THERE’S THAT 🤗😬😬😬 #justkeepsmiling 💜
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📣🐺 ATTENTION #WOLFPACK 🚨
Here’s your Monday morning Lupus Advocacy Challenge... . ⭐️👉 Start a conversation with someone new today about Lupus. Someone you usually don’t talk to about it. Dance outside your comfort zone a little today with this challenge. 💃🏻🕺🏻
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It’s wild how scary it is to put yourself out there with someone and a new Lupus convo but the risk is worth the reward. At the very least you’re raising awareness and starting a convo with someone who might not even know what Lupus is! Plus you just might just stumble upon some unexpected compassion and empathy from an unsuspecting stranger/acquaintance/coworker. 💜
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Give it a shot today and let us know in the comments later 👇 how it went orrrrr make a social media post about it! 📲 (Just make sure you ask their permission if you use their real name in your post). ⭐️🐺🐺🐺💪💜💜💜 #lupusadvocates 🦋 #wolfpack #alphaslovemondays #wereallalphas 💥📢🐺🐺🐺⚔️🗣🗣🗣💜💜💜 It’s Monday morning so every Lupus Warrior is putting on 3 things this morning: . . 1. Our armor ⚔️🛡- to hide the pain and suffering because we have some #boss level shit to do today. 💪💯 #getoutofourwaylupus . . 2. Our clothes 👔👕👚👗👞👠- we’re strategically dressing to hide our rashes and Lupus scars so we are not viewed as weak, sick, or incompetent in our workplaces. #lupusdoublelife . . 3. A smile 😀😉- because even though we are in horrible pain and beyond exhausted, we live to fight another day and that alone is something to smile about. 🙌💯 PLUS WE’RE GETTING WOLFPACK JACKETS/HOODIES SOON SO THERE’S THAT 🤗😬😬😬 #justkeepsmiling 💜 . . . 📣🐺 ATTENTION #wolfpack 🚨 Here’s your Monday morning Lupus Advocacy Challenge... . ⭐️👉 Start a conversation with someone new today about Lupus. Someone you usually don’t talk to about it. Dance outside your comfort zone a little today with this challenge. 💃🏻🕺🏻 . It’s wild how scary it is to put yourself out there with someone and a new Lupus convo but the risk is worth the reward. At the very least you’re raising awareness and starting a convo with someone who might not even know what Lupus is! Plus you just might just stumble upon some unexpected compassion and empathy from an unsuspecting stranger/acquaintance/coworker. 💜 . . Give it a shot today and let us know in the comments later 👇 how it went orrrrr make a social media post about it! 📲 (Just make sure you ask their permission if you use their real name in your post). ⭐️🐺🐺🐺💪💜💜💜 #lupusadvocates 🦋 #wolfpack #alphaslovemondays #wereallalphas 💥📢🐺🐺🐺⚔️🗣🗣🗣💜💜💜
  • It’s Monday morning so every Lupus Warrior is putting on 3 things this morning: . . 1. Our armor ⚔️🛡- to hide the pain and suffering because we have some #boss level shit to do today. 💪💯 #getoutofourwaylupus . . 2. Our clothes 👔👕👚👗👞👠- we’re strategically dressing to hide our rashes and Lupus scars so we are not viewed as weak, sick, or incompetent in our workplaces. #lupusdoublelife . . 3. A smile 😀😉- because even though we are in horrible pain and beyond exhausted, we live to fight another day and that alone is something to smile about. 🙌💯 PLUS WE’RE GETTING WOLFPACK JACKETS/HOODIES SOON SO THERE’S THAT 🤗😬😬😬 #justkeepsmiling 💜 . . . 📣🐺 ATTENTION #wolfpack 🚨 Here’s your Monday morning Lupus Advocacy Challenge... . ⭐️👉 Start a conversation with someone new today about Lupus. Someone you usually don’t talk to about it. Dance outside your comfort zone a little today with this challenge. 💃🏻🕺🏻 . It’s wild how scary it is to put yourself out there with someone and a new Lupus convo but the risk is worth the reward. At the very least you’re raising awareness and starting a convo with someone who might not even know what Lupus is! Plus you just might just stumble upon some unexpected compassion and empathy from an unsuspecting stranger/acquaintance/coworker. 💜 . . Give it a shot today and let us know in the comments later 👇 how it went orrrrr make a social media post about it! 📲 (Just make sure you ask their permission if you use their real name in your post). ⭐️🐺🐺🐺💪💜💜💜 #lupusadvocates 🦋 #wolfpack #alphaslovemondays #wereallalphas 💥📢🐺🐺🐺⚔️🗣🗣🗣💜💜💜
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  • thelupustrainer - Sara Esidore @thelupustrainer 2 weeks ago
  • 🐺🐺🐺🦋⚔️💜🗣🗣🗣 #lupusadvocates #wolfpack 
I want to compile a massive list of Lupus related IG accounts so all of us Lupus Warriors, Advocates, Influencers, and Supporters can follow and support each other. Please tag any accounts you enjoy below or if you share Lupus related posts on your own page please tag yourself! I will follow all accounts tagged below (as long as they’re real and legit lol) 💜

Many of us were lone Lupus wolves (#funfact Lupus is Latin for “wolf”) isolating and hiding our disease for many years (and many of you still are...I see you 🐺👀💜💜💜). I was a lone wolf for 13 years following my diagnosis. Us lone wolves didn’t ever speak up or ask for what we truly needed, we just kept it all to ourselves and did whatever we had to do to survive at that time. But just surviving isn’t good enough and those days where we have to hide are over. Now every single day we have more lone wolves stepping out, joining our #lupusadvocate #wolfpack, sharing their story, speaking up and saying WE 👏 DESERVE 👏 BETTER 👏 🐺🐺🐺🦋⚔️💜🗣🗣🗣 Battling this brutal disease day in and day out sharpens you into a warrior and forces you to fend for yourself every.single.day. So in this #wolfpack WE’RE ALL ALPHAS 🐺💪🔥🗣💜💜💜 simply because we have to be in order to survive being constantly attacked by our own immune system every day. (Now would be a good time to make that other Lupus Awareness IG account you’ve been thinking about 😉 and don’t forget to tag your new account below, I want to follow you! 🐺⚔️💪🦋💜💜💜 LET’S GOOOOOO 📣 (insert super dramatic wolf howling sound here for theatrics and a fancy exit) 😂😂 ALSO, WE’RE TOTALLY GETTING JACKETS SO THERE’S THAT 😎 🐺🐺🐺🦋⚔️💜🗣🗣🗣 #lupusadvocates #wolfpack I want to compile a massive list of Lupus related IG accounts so all of us Lupus Warriors, Advocates, Influencers, and Supporters can follow and support each other. Please tag any accounts you enjoy below or if you share Lupus related posts on your own page please tag yourself! I will follow all accounts tagged below (as long as they’re real and legit lol) 💜 Many of us were lone Lupus wolves (#funfact Lupus is Latin for “wolf”) isolating and hiding our disease for many years (and many of you still are...I see you 🐺👀💜💜💜). I was a lone wolf for 13 years following my diagnosis. Us lone wolves didn’t ever speak up or ask for what we truly needed, we just kept it all to ourselves and did whatever we had to do to survive at that time. But just surviving isn’t good enough and those days where we have to hide are over. Now every single day we have more lone wolves stepping out, joining our #lupusadvocate #wolfpack, sharing their story, speaking up and saying WE 👏 DESERVE 👏 BETTER 👏 🐺🐺🐺🦋⚔️💜🗣🗣🗣 Battling this brutal disease day in and day out sharpens you into a warrior and forces you to fend for yourself every.single.day. So in this #wolfpack WE’RE ALL ALPHAS 🐺💪🔥🗣💜💜💜 simply because we have to be in order to survive being constantly attacked by our own immune system every day. (Now would be a good time to make that other Lupus Awareness IG account you’ve been thinking about 😉 and don’t forget to tag your new account below, I want to follow you! 🐺⚔️💪🦋💜💜💜 LET’S GOOOOOO 📣 (insert super dramatic wolf howling sound here for theatrics and a fancy exit) 😂😂 ALSO, WE’RE TOTALLY GETTING JACKETS SO THERE’S THAT 😎
  • 🐺🐺🐺🦋⚔️💜🗣🗣🗣 #lupusadvocates #wolfpack I want to compile a massive list of Lupus related IG accounts so all of us Lupus Warriors, Advocates, Influencers, and Supporters can follow and support each other. Please tag any accounts you enjoy below or if you share Lupus related posts on your own page please tag yourself! I will follow all accounts tagged below (as long as they’re real and legit lol) 💜 Many of us were lone Lupus wolves (#funfact Lupus is Latin for “wolf”) isolating and hiding our disease for many years (and many of you still are...I see you 🐺👀💜💜💜). I was a lone wolf for 13 years following my diagnosis. Us lone wolves didn’t ever speak up or ask for what we truly needed, we just kept it all to ourselves and did whatever we had to do to survive at that time. But just surviving isn’t good enough and those days where we have to hide are over. Now every single day we have more lone wolves stepping out, joining our #lupusadvocate #wolfpack, sharing their story, speaking up and saying WE 👏 DESERVE 👏 BETTER 👏 🐺🐺🐺🦋⚔️💜🗣🗣🗣 Battling this brutal disease day in and day out sharpens you into a warrior and forces you to fend for yourself every.single.day. So in this #wolfpack WE’RE ALL ALPHAS 🐺💪🔥🗣💜💜💜 simply because we have to be in order to survive being constantly attacked by our own immune system every day. (Now would be a good time to make that other Lupus Awareness IG account you’ve been thinking about 😉 and don’t forget to tag your new account below, I want to follow you! 🐺⚔️💪🦋💜💜💜 LET’S GOOOOOO 📣 (insert super dramatic wolf howling sound here for theatrics and a fancy exit) 😂😂 ALSO, WE’RE TOTALLY GETTING JACKETS SO THERE’S THAT 😎
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  • lupusconqueror - K. Katrice Daniels @lupusconqueror 3 weeks ago
  • Welcome February and Happy Friday! 💜 Can you believe January's already done? It seemed to have flown by but here we are in February. *
*
It's #blackhistory month, #monthoflove #cbdadvocatemonth, and #buildabusiness month (I totally made the last 2 up lol). Its a lot of celebrating going on in the month of February. *
*
Shout out to the @lupusorg  for starting the month off right and bringing to light the severity Lupus has on African Americans more so than it has on other races diagnosed with the disease. 1 in 537 young black women are impacted by Lupus between the ages 15-44. *
*
Not only is a cure needed, but more importantly better ways to manage and cope with symptoms and side effects that include more emphasis on the mental and emotional aspect of living with Lupus and it co-conspirators. *
*
Lupus awareness must be a 365 advocacy, not just in May. 💜 Welcome February and Happy Friday! 💜 Can you believe January's already done? It seemed to have flown by but here we are in February. * * It's #blackhistory month, #monthoflove #cbdadvocatemonth, and #buildabusiness month (I totally made the last 2 up lol). Its a lot of celebrating going on in the month of February. * * Shout out to the @lupusorg for starting the month off right and bringing to light the severity Lupus has on African Americans more so than it has on other races diagnosed with the disease. 1 in 537 young black women are impacted by Lupus between the ages 15-44. * * Not only is a cure needed, but more importantly better ways to manage and cope with symptoms and side effects that include more emphasis on the mental and emotional aspect of living with Lupus and it co-conspirators. * * Lupus awareness must be a 365 advocacy, not just in May. 💜
  • Welcome February and Happy Friday! 💜 Can you believe January's already done? It seemed to have flown by but here we are in February. * * It's #blackhistory month, #monthoflove #cbdadvocatemonth, and #buildabusiness month (I totally made the last 2 up lol). Its a lot of celebrating going on in the month of February. * * Shout out to the @lupusorg for starting the month off right and bringing to light the severity Lupus has on African Americans more so than it has on other races diagnosed with the disease. 1 in 537 young black women are impacted by Lupus between the ages 15-44. * * Not only is a cure needed, but more importantly better ways to manage and cope with symptoms and side effects that include more emphasis on the mental and emotional aspect of living with Lupus and it co-conspirators. * * Lupus awareness must be a 365 advocacy, not just in May. 💜
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  • theblurapp - BLUR @theblurapp 3 weeks ago
  • Our featured charity of the week here at BLUR is @lfa_northeast! The Lupus Foundation of America Northeast Region is part of a national force devoted to solving the cruel mystery of lupus while providing caring support to those who suffer from its brutal impact. They work with local health professionals and volunteers to provide information and programs to ensure people with lupus and their families get answers and health professionals know about new means to diagnose and manage the disease. 
With the help of informed volunteers and committed supporters, they conduct activities to increase awareness of lupus, rally support for those who are affected by lupus and advocate on their behalf, and raise money to support research and education programs so everyone affected by lupus can have an improved quality of life. Our featured charity of the week here at BLUR is @lfa_northeast! The Lupus Foundation of America Northeast Region is part of a national force devoted to solving the cruel mystery of lupus while providing caring support to those who suffer from its brutal impact. They work with local health professionals and volunteers to provide information and programs to ensure people with lupus and their families get answers and health professionals know about new means to diagnose and manage the disease. With the help of informed volunteers and committed supporters, they conduct activities to increase awareness of lupus, rally support for those who are affected by lupus and advocate on their behalf, and raise money to support research and education programs so everyone affected by lupus can have an improved quality of life.
  • Our featured charity of the week here at BLUR is @lfa_northeast! The Lupus Foundation of America Northeast Region is part of a national force devoted to solving the cruel mystery of lupus while providing caring support to those who suffer from its brutal impact. They work with local health professionals and volunteers to provide information and programs to ensure people with lupus and their families get answers and health professionals know about new means to diagnose and manage the disease. With the help of informed volunteers and committed supporters, they conduct activities to increase awareness of lupus, rally support for those who are affected by lupus and advocate on their behalf, and raise money to support research and education programs so everyone affected by lupus can have an improved quality of life.
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