Sometimes I just go to the gym for a lay down 🤗
Not really, but I do sometimes just focus on movement and mobility as if you're lacking with the movement, you'll struggle to complete all of those more complex lifts and tricks you want to perform. Don't neglect your muscles properties because one day they'll be gone and you might not be able to touch your toes again ☀️
Now I'm back in a more structured routine I'll be visiting my favourites at @hotpodyoganorthampton cause it's been too long !!!!
This is what I try to tell myself when I’m overwhelmed with anger that I have this disease, when I try to understand what I did wrong, why my body decided to turn against me. I’m sick of all these appointments and “options” and new drugs/trials/supplements that “might” do the job. I can’t handle the constant disappointment. I can’t handle the constant pain. I miss my life. I miss it so much. Filled with so much frustration today 🙁
So many options are sold to us as potential cures for chronic illness and it can lead to a mad treadmill of trying complex diets, supplements, alternative therapies, changes to everything in the house to remove toxins etc, and that’s on top of the usual appointments and associated admin.
You can feel like you aren’t doing enough , then that becomes a source of stress. You can feel that if you just try harder, you will feel better.
Many of the commonly promoted ‘improvements’ involve becoming highly controlling of our diet, and our environment.
Ironically, the same people who promote all this stuff (and who have a chef, housekeeper and PA) also tell us it’s about keeping calm and avoiding stress!
I’m with that last part.
Remove sources of stress, even if they are ‘healthy’ and let that sh*t go!
Book a massage, laugh with a friend, go for a walk. All these do you more good than avoiding gluten/dairy/nightshades/oxolates or lying in an oxygen tent to ensure optimum air quality 😉
If you can make a positive change without stress , then go right ahead.
If you can’t, then let it go.. 🧘🏼♂️ 🧘♀️ 🧘🏼♂️ #namaste#wellnessjourney#healingjourney#chronicillness#chronicpain#chronicpainwarrior#chronicpainwarriors#invisibleillness#lymedisease#lymewarrior#lymediseaseawareness#cfs#potssyndrome#posturalorthostatictachycardiasyndrome
Hey guys, it’s warrior Wednesday! In true warrior style I am back at the hospital for another appointment 🙄. This one is with Endocrinology, something’s up with my adrenals and cortisol levels 🤪. I am so used to hospital appointments, tests and procedures. How about you? They don’t phase me at all. A positive about having this illness is that it makes you super strong and fearless. We have to be as warriors!
What I find interesting is how other (healthy) people react when you tell them you have a hospital appointment or procedure. It’s like they have to show extreme concern and be over the top or they just get really uncomfortable and can’t look you in the eye and don’t really know what to say. Don’t worry non chronically ill people, we got this. It is our normal. Just play it cool, if you have a question - just ask 😊. We don’t need sympathy or advice. Just a little kindness, being a friend and listening when we need to vent is more than enough 💕
Rainy day today. Matching the way I have to spend my day. Was up early to drop @stevieten2002 at camp, then back to bed. Now I will be working in to the night to do my day’s work. But it feels good on a rainy day. #rain#work#gettingthingsdone. Photo credit: Kourosh Qaffari on @unsplash
As we reach the end of June, we’re reviewing the results of our monthly poll on M.E. and Loneliness:⠀
To what extent has loneliness and social isolation become a consequence of having ME?⠀
Constantly (43%, 155 Votes)⠀
Most of the time (39%, 141 Votes)⠀
Some of the time (16%, 59 Votes)⠀
Occasionally (2%, 6 Votes)⠀
Not at all (0%, 1 Votes)⠀
Total Voters: 362⠀
Living with M.E. has an impact on various day-to-day activities. Areas such as relationships and family life, social activities, employment and education can all be made increasingly difficult or even impossible by the condition, and this can lead to loneliness and social isolation.⠀
So, we’d like to share some accessible and M.E.-Friendly tips on reducing the effects of loneliness. What are your top tips for managing isolation? ⠀
IMAGE CREDITS: @thisthingtheycallrecovery⠀
When a squirrel squares up to you in the woods on an early morning stroll and you don't know what the password is and he won't let you pass. Nuts! I always feel better out in Freckles so I went exploring, parked up in the dark and woke up next to water and lots of trees. One of my favourite scenarios. Mountains, water, trees, huge open space. I managed a little wander up the path and just surrounded by all kinds or creatures. Heron, ducks galore, no idea what all the other birds were and so many squirrels. They are not shy. As I'm typing this there is a squirrel approaching a woman and her dog by their car. Cheeky sods. And now there is a crow having a go at a bunch of pidgeons. Just wish I had my proper camera with me. I shall certainly come here again. Now to take full advantage of Freckles and get back in to bed for a rest.
Ah and that's why the squirrels are so brave, there's a chap feeding them hehe.
How do you deal with fatigue? Just woke up, but hey, my body doesn't mind. Still very very tired.
For me fatigue is the number one symptom I just can't get used to.
I have a couple of strategies to deal with fatigue.
👉1. Sleep a lot
This one seems quite obvious. It can be hard for people with chronic illnesses though to fall asleep at night due to pain, restlessness or other symptoms. I try to sleep at least 10 hours every day. 9 hours in the night and one hour during the day at my peak tiredness which is around 16.
. 👉2. Routine
Also, my bed routine is kinda holy. I go to my room half an hour before bedtime to unwind and at 11 o'clock I turn off the lights. In the morning I try to wake up at the same time everyday, even though this one can be tough at times.
👉3. Check in with my body
At a couple of points during the day I check how my body is feeling and determine if there is anything I can do to help my body feel better. Symptoms of any kind increase fatigue, so managing my symptoms is one strategy.
For my a bit of refreshment can postpone sleeping for a while. I, for example, take a shower, go for a walk, take a coffee ☕ or listen to energetic music.
This might not always work, but sometimes it does wonders. At least for an hour.
👉5. Taking it slow
The last advice I have is: Take it slow! One thing at a time. Step for step. Being tired can be very overwhelming and feel unbelievable disabling. For focusing on small tasks makes me able to manage stuff that needs to be done despite the fatigue.
Hope these tips are useful to someone somewhere. And have an awesome energetic day! 🌞
just got back from italy✈️this was my first time flying since my diagnosis & I was travelling by myself which was rather nerve wracking. the first couple of days I had a slightly bad tummy due to nerves from the airport but this soon settled & the journey home was a lot calmer. on the second to last day I had a upset stomach, but this had settled mostly by the evening in time to go out for dinner😋 I’m so glad I overcame my nerves and went on the holiday as I had the best week💕 .